Androgen Insensitivity

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Information about Androgen Insensitivity, often called AIS or “Androgen Insensitivity Syndrome.”

  • A photo of Lavelle Wollam, an intersex woman affected by the transgender military ban. She is in a split photo with tape, and on the other side of the photo is the U.S. Navy logo.

Transgender Military Ban Or Not, Intersex People Like Me Still Can’t Serve

February 1st, 2021|

Military service is a pathway to opportunities for many. Policies discriminating against transgender people always hit intersex people too, but we rarely make it into these conversations. President Biden's order removing the transgender military ban still doesn't fix denials for intersex people like me. This is my story. By Lavelle Wollam     As of

  • Illustration on intersex and eating disorders - a person huddles in a bubble underwater with eyes closed, arms hugging themselves. Seaweed grabs and encloses the bubble.

When Will My Body Be Mine? On Intersex Surgery and Eating Disorders

September 30th, 2020|

Infant genital surgery made me feel like my body wasn’t mine. An eating disorder felt like a way to reclaim control. Here’s how I found my way out. By Marissa Adams   Be aware: this personal essay covers infant genital surgery, medical trauma, and inpatient programs for anorexia.   People with eating disorders learn to

  • Glamour Photo of Jackie Green for Intersex Advocacy

Accepting Myself as an Intersex Woman

March 22nd, 2017|

My name is Jackie Green and for as long as I can remember my biggest fear in life was that someone would find out that I had XY chromosomes - a fact about me that you can’t see, feel, or sense in any way.  Yet I still found myself afraid of what others would think

What Would I Have Been Like?

February 20th, 2017|

What Would I Have Been Like? Examining hidden preconceptions & perils of the Intersex Experience (#1) by Karen Walsh This question has morphed quite a bit over the years for me. It went from common little girl fantasies of being a traditional Mom & wife, through imagining what I’d be like if I didn’t have Complete

What Hanne Gaby Odeile Means For Intersex People – Like Me

January 25th, 2017|

In addition to being an Intersex activist and political campaigns consultant, Susannah Temko who lives in London is also a member of interACT Youth. Susannah wrote this reflection for Huffington Post UK on fashion model Hanne Gaby Odeile’s recent disclosure has meant to her. PHOTO CREDIT: VAN TINE DENNIS/ABACA USA

  • Lauren Comes Out as Intersex on Faking It.

Intersex Inclusion in Popular Media

May 19th, 2016|

By: Amanda Saenz, interACT Youth member and “Raven” on MTV’s Faking it TW: q-slur Article in Hollywood Reporter Faking It officially came to an end this week, and I think it’s time to discuss the importance of all the show has done for the intersex community. In early November, as the anticipated cold

Support and Advocacy – Reflections on the AIS-DSD SG Conference

August 13th, 2015|

Last week in Cincinnati, Ohio I attended my seventh Androgen Insensitivity – Differences of Sex Development Support Group (AIS-DSD SG) conference and am still basking in the “orchid love.” There is nothing quite like it.  About eight years ago I discovered the support group and attended my first conference in Dallas. Mind blown . Not

Turning the Lens Inward: Sean Saifa Wall

October 15th, 2014|

AIC’s Blog Series, “Turning the Lens Inward,” features interviews with some of the key leaders and supporters who have helped make AIC the strong organization we are today! The third installment comes from AIC’s Board President, Sean Saifa Wall, and gives readers a glimpse of what Saifa believes are some of the intersex communities biggest

Turning the Lens Inward: Kimberly Zieselman

September 9th, 2014|

AIC’s Blog Series, “Turning the Lens Inward,” features interviews with some of the key leaders and supporters who have helped make AIC the strong organization we are today! The second installment comes from AIC’s new Executive Director, Kimberly Zieselman. —— At the end of my first day as AIC’s executive director a friend playfully asked

“Love is the Best Medicine”: Why I am Proud of my Intersex Family

July 1st, 2014|

Earlier this month (6/1/14) Arlene Baratz, AIC Board member, spoke at Sunnyhill Unitarian Universalist Church (Pittsburgh, PA) and gave an inspiring speech raising intersex awareness in honor of Pride month. Read to uncover Arlene’s personal journey with intersex as she describes what it was like to complete medical school and the surprise she had when