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Blog posts, stories, and resources to help parents care for their intersex children.

  • Illustration on surgery and congenital adrenal hyperplasia - a scalpel cuts along a dotted line, between one shape on the left that is a tangled pile of string, and another shape on the right that is an untangled string.

Congenital Adrenal Hyperplasia Surgery: A Mom and Nurse Busts 5 Myths

July 8th, 2020|

Congenital Adrenal Hyperplasia is one of the most common medical terms associated with intersex genital differences. A mom and nurse sits down with an intersex advocate to uncover common misconceptions around genital surgery. By Hans Lindahl and Stephani Lohman   ALSO AVAILABLE IN SPANISH! "Una mamá y enfermera desmiente 5 mitos sobre la cirugía genital

New study shows Higher Risks of Significant Anesthetic Brain Toxicity in Children with Repeat Hospitalizations or Surgery

May 3rd, 2018|

by Arlene B. Baratz, MD Chair, Medical and Research Policy Committee: interACT Advocates for Intersex Youth Coordinator, Medical and Research Affairs: AIS-DSD Support Group   In 2017, FDA announced that pediatric anesthesia may negatively affect brain development and issued its strongest possible warning. [16] The potential risk of anesthetic neurotoxicity in children with SWCAH is

Turning the Lens Inward: Meg

August 20th, 2014|

AIC is proud to share the second in a series of interviews with key leaders and supporters who have helped make AIC the strong organization we are today! Meg, one of our key supporters, shares part of her journey as the next story in AIC’s series, Turning the Lens Inward.   I first heard about

“Love is the Best Medicine”: Why I am Proud of my Intersex Family

July 1st, 2014|

Earlier this month (6/1/14) Arlene Baratz, AIC Board member, spoke at Sunnyhill Unitarian Universalist Church (Pittsburgh, PA) and gave an inspiring speech raising intersex awareness in honor of Pride month. Read to uncover Arlene’s personal journey with intersex as she describes what it was like to complete medical school and the surprise she had when

Celebration of Community Empowerment this Intersex Awareness Day by Anne Tamar Mattis

October 25th, 2013|

Saturday October 26, 2013 is International Intersex Awareness Day (IAD).  This day marks the anniversary of the October 26, 1996 demonstration where activists and allies held a public demonstration demanding visibility and justice in Boston, where the American Academy of Pediatrics held its annual conference.   IAD has become an international day of grass-roots action