Blog posts about medical or social research on intersex people.
For almost a quarter century, the medical community has been aware of the profound damage that can result from nonconsensual genital surgery performed on intersex infants. But an increasingly small number of doctors still insist that such surgery should continue – simply because they don’t know what will happen to intersex kids if they don’t have surgery. Finally, a group
Israel’s Ministry of Health has just issued a new statement of official procedure addressing treatment of intersex people that represents a real step forward. While the policy falls short of calls from international human rights organizations to stop all medically unnecessary surgeries on intersex infants, it does provide for psychosocial support, recognizes that intersex conditions
The Council of Europe Publishes Study on the Rights of Children in Biomedicine, Including Entire Chapter Highlighting the Experience of Intersex Children Last month, the Council of Europe published “The Rights of Children in Biomedicine: Challenges posed by scientific advances and uncertainties” through its Committee on Bioethics. The Committee, tasked with assessing ethical and legal
interACT is eager to collaborate with researchers who are interested in conducting research into issues that matter to our community--people born with variations of sex anatomy, also known as intersex traits--and their families. Our Medical Research and Policy Committee, chaired by Arlene Baratz MD, has identified specific criteria for our collaboration with researchers on the development of high-quality
interACT is pleased to announce the publication of "Normalizing Intersex" - a special edition of the Narrative Inquiry in Bioethics Journal published in partnership with the Voices project. This PDF version may be shared widely and includes a variety of important diverse intersex narratives speaking out about their experiences of oppression dealing with the medical
NIH Recognizes need to address intersex human rights and other community priorities in research interACT is making an impact by helping to set better priorities and better standards for federally funded intersex research. The administrative building of the National Institutes of Health is shown in Bethesda, Md. (AP Photo/J. Scott Applewhite) We
In 2010, the National Institutes of Health (NIH) commissioned the Institute of Medicine to assess the current state of knowledge about the health of lesbian, gay, bisexual, and transgender (LGBT) people and to identify research gaps and formulate a research agenda that could guide NIH in enhancing and focusing research in this area. The resulting
Reflecting upon what prompted her to author Making Sense of Intersex: Changing Ethical Perspectives in Biomedicine, American University philosophy professor Ellen Feder explains that she did not initially set out to write a book. However, after 15 years of study, field research and collaboration with the parents of intersex children, intersex youth, and adults, Feder
In February Alice Dreger published an article which explored the construct of gender and the current medical model lack of psych-social support for boys born with hypospadias in Pacific Standard. “Males are sometimes born with a urinary meatus (what kids might call “the pee hole”) somewhere other than the tip of the penis, which can
AIC assesses top clinical priorities for Intersex and people with DSD AIC has an opportunity to offer input and consult on research affecting children with intersex conditions or DSD funded by the National Institutes of Health (NIH). We asked for help from you, our AIC constituents, to identify a list of 5 top priorities for
