Resources: Intersex Treatment and Outcomes

Books

• Improving Emotional and Behavioral Outcomes for LGBT Youth: A Guide for Professionals (2012)

Articles

• The Largest Study of Intersex People in U.S. Is Here, and It’s Alarming (2020)
• Why Intersex Patients Need the Truth and Doctors Need to Listen (2017)
• Research Into Outcomes of Treatment for Children with Differences of Sex Development Demands Caution (2012)
• What Hospitalists Should Know About Intersex Adults (2017)
• Largest Ever Survey Of Intersex Australians Shows High Rates Of Suicide, Poverty (2016)
• Prenatal dexamethasone adversely affects cognitive function in healthy girls (2016)
• Intersex Stories and Statistics from Australia (2016)
• Voices – Personal Stories from the Pages of NIB – Normalizing Intersex (2016)
  • VOICES: Normalizing Intersex – A Study Guide
  • Podcast with Symposium Editors Georgiann Davis and Ellen K. Feder
• Letter to the Editor: In response to ‘Managing Variation in Sex Development,’ Journal of Pediatric Endocrinology and Metabolism (2006)

Studies

• DSD/Intersex: Gaps in Psychosocial Care for Children (2018)
• Objective Cosmetic and Anatomical Outcomes at Adolescence of Feminising Surgery for Ambiguous Genitalia Done in Childhood (2001)
• Timing of Elective Surgery on the Genitalia of Male Children With Particular Reference to the Risks, Benefits, and Psychological Effects of Surgery and Anesthesia (1996)

Additional References to Cite

Thank you to interACT Board member Elizabeth Reis for providing the following list of additional resources:

Crouch, N. S., Liao, L.-M., Woodhouse, C. R. J., Conway, G.S., & Creighton, S. M. (2008). Genital sensitivity and sexual
function following childhood cosmetic genital surgery: Results based on women with congenital adrenal hyperplasia. Journal of Urology, 179, 634–638.

Ellens, R. E., Bakula, D. M., Mullins, A. J., Reyes, K. J. S., Austin, P., Baskin, L., . . . Galan, D. (2017). Psychological adjustment of parents of children born with atypical genitalia 1 year after genitoplasty. Journal of Urology, 198, 914–920.

Liao, L.-M., Conway, G. S., Ismail-Pratt, I., Bikoo, M., & Creighton, S. M. (2011). Emotional and sexual wellness and quality of life in women with Rokitansky syndrome. American Journal of Obstetrics and Gynecology, 205, 117. e1–117.e6.

Liao, L.-M., Hegarty, P., Creighton, S., Lundberg, T., & Roen, K. (2019). Clitoral surgery on minors: An interview study
with clinical experts of differences of sex development. BMJ Open, 9, Article e025821. https://doi.org/10.1136/bmjopen-2018-025821